• Survey of parents’ needs in organisation of seriously ill children care

Survey of parents’ needs in organisation of seriously ill children care

The palliative and hospice care in pediatrics

INTERNATIONAL JOURNAL REHABLITATION AND PALLIATIVE MEDICINE.2017.1-2(5-6):59-62; doi 10.15574/IJRPM.2017.5-6.59

Melnyk R. M.
SHEI “Ivano-Frankivsk National Medical University”, Ukraine

Objective. To study the seriously ill children relatives’ needs to determine the areas for improvment of the paediatric palliative care organization.
Material and methods. The survey of 372 relatives of seriously ill children in Ivano-Frankivsk region was conducted.
Results. It was suggested that families of seriously ill children have a critical need of assistance of medical (88.0%) and social (74.4%) workers, psychologists (72.6%), priests (75.0%), teachers (72.4%) and volunteers (60.5%). It was shown insufficient provision of seriously ill children of medicines (62.1%) and equipment for special care (47.6-78.2%), as well as inadequate engagement in medical care delivery of nurses (39.6-43.5%), rehabilitation therapists (51.1-86.9%) and psychotherapists (60.2-90.2%).
Conclusion. Pediatric palliative care requires significant improvement, because it does not satisfied the seriously ill children parents’ needs in medical care and social support, and does not respond to the principles of a multidisciplinary approach.
Key words: palliative care for children, organization of health care.

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