- Ethical and Legal Aspects of Palliative Care for Children in Ukraine
Ethical and Legal Aspects of Palliative Care for Children in Ukraine
INTERNATIONAL JOURNAL REHABLITATION AND PALLIATIVE MEDICINE.2017.1-2(5-6):29-33; doi 10.15574/IJRPM.2017.5-6.29
Gavriliuk A. O., Zharlinska R. H.
National Pirogov Memorial Medical University, Vinnytsya, Ukraine
The development of the national network of palliative and hospice care for children is essential in present-day reality, when the number of terminally ill patients is constantly mounting. According to the experts’ estimation, Ukraine in terms of child mortality from cancer ranks 5th in Europe – 5 cases per 100,000. This paediatric population needs palliative care. Ethics of palliative care provides the best possible quality of life for seriously ill person and legal aspects guarantee the personal and civil right protection. Today in Ukraine were made some steps towards the creation of the state training of medical and social professionals providing palliative care and legal principles of palliative care were established. To disclose of the content of the main ethical-legal aspects of palliative care system for children with cancer in Ukraine, identify the problems faced by these children and their families, and their solution approaches. The following issues were considered: near absence of specialized palliative care institutions, the lack of competent palliative care specialists and the inability to provide adequate analgesia in these circumstances. In Ukraine, certain measures are being taken towards the creation of a state system for the training of medical and social specialists that provide palliative care, and the regulatory framework for palliative care has been created. It was determined that the organizational palliative care system in Ukraine needs further development, including appropriate regulatory support, modernization of structure of high quality care, and creation of children’s palliative and hospice departments and their sufficient funding. National legislation needs further reforms of health care, including palliative and hospice care.
Key words: palliative care for children, hospice, incurable patient, neoplastic diseases in children.
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