- Analysis of socio-psychological characteristics of the seriously ill children closest relatives
Analysis of socio-psychological characteristics of the seriously ill children closest relatives
INTERNATIONAL JOURNAL REHABLITATION AND PALLIATIVE MEDICINE.2018.1(7):63-67; doi 10.15574/IJRPM.2018.7.63
Detsyk O. Z., Melnyk R. M.
Ivano-Frankivsk National Medical University, Ukraine
Aim. To analyse some socio-psychological characteristics of the seriously ill children closest relatives to determine the ways of improving the paediatric palliative care management.
Materials and methods. It was conducted survey of 372 relatives of seriously ill children in Ivano-Frankivsk region.
Results. It was established that the closest relatives of seriously ill children are characterized by a high level of socio-psychological anxiety. Its main reasons are: the fear of a child’s loss (85.3% of the respondents, or an average of 4.38 points from the maximum possible 5 points on the basis of self-esteem), uncertainty about the future (66.4%, 3.56 points), constant feeling of anxiety (53.3%, 3.35 points) and guilt before a child (49.5%, 3.09 points). It was shown that the appearance of a serious ill child negatively affects the satisfaction of relatives with their own lives (88.4% of respondents, more characteristic of male representatives, p <0.05), as well as their subjective sense of health (66.3%, more accentuated among female, p <0.01). It was revealed that relatives of seriously ill children have significant needs in the psychological (58.0%) and spiritual assistance (46.2%), and also in establishing regular communications with other similar families (83.3%), especially important for women (p <0.05).
Conclusion. In order to improve the quality of life of the closest relatives of children with special needs, it is necessary in the system of pediatric palliative care to involve psychologists, clergymen, and non-governmental public organizations supporting such families.
Key words: palliative care for children, health care management.
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